The Myasthenia Gravis Association (MGA) is the national charity for people with myasthenia gravis (or ‘the Ragdoll Illness’), supporting and providing information to patients, raising awareness, and funding medical research. Our patron is Ronnie Whelan whose eldest daughter has the illness.Whether you are concerned about symptoms, have been newly diagnosed, know someone with the disease or are just curious, we are here to lend support directly and act as gateway.
The Myasthenia Gravis Association (MGA) is a registered charity in both Ireland and the UK. The organisation began in the UK in May 1976, offering support to Myasthenics and their families, increasing public and medical awareness and raising funds for research.
The National Coordinator for Ireland is Karen Clancy, based in Co. Clare.
The MGA headquaters are based in Derby, UK with branches throughout the UK and Ireland.
The Regional Organiser in Northern Ireland is Jan Beaumont based in Co Down.
The MGA acts as a contact point, putting sufferers and their families in touch with each other so that they do not feel isolated in dealing with this rare disease.
The association also puts members in touch with other appropriate agencies for any specific problems they are facing, for example problems with benefits.
We are honoured to have Ronnie Whelan as our patron and you can read more about Ronnie’s story here.